Coping with Lupus and Prothrombin Gene Mutation

I am looking for any help in locating a support group for my daughter. My 6 yr old daughter has been diagnosed with Prothrombin Gene Mutation (genetic blood clotting disorder) and Lupus. She is currently being treated for a blood clot in her rt arm with twice daily injections of Lovenox and she is not coping with it well. She is also in constance pain related to her lupus. She has costrocongitist (chest pain) and constant tummy pain (believe stress induced). We have been dealing with this all for almost 8 months and its just not getting any esasier. I have tried getting her to talk to therapyst but really think she needs to talk to other kids in similar situations. Do you or anyone know of anythings available in the Wichita Ks area that would be able to help? Please we are searching for something for her as she is drasticlly changing because of this and I dont want my presious lil girl to be crushed by this disorder, as it is going to be long term.